links
social networking
books on arthritis
scholarships
Inflammatory arthritis model of care graphic
social networking
books on arthritis
scholarships
Inflammatory arthritis model of care graphic
Resources
Learn more about arthritis and managing disease with these patient organizations, research, and regulatory resources, recommended by our community.
Arthritis Organizations:
Canada
Arthritis Broadcast Network
arthritisbroadcastnetwork.org
Led by Arthritis Consumer Experts, the Arthritis Broadcast Network (ABN) is a multi-media platform for the arthritis community to share news, information and stories about living well with arthritis. A proven, effective, popular source of arthritis patient information and education, ABN has the most videos and views on a Canadian YouTube arthritis channel.
Arthritis Research Canada serves in an advisory capacity for the scientific content of the ABN.
Arthritis Health Professions Association
ahpa.ca
The Arthritis Health Professions Association (AHPA) provides an excellent forum for health professionals working in the field of arthritis to learn, share knowledge, collaborate, and network.
Arthritis Research Canada
arthritisresearch.ca
Arthritis Research Canada is the largest clinical arthritis research centre in North America, with centres in British Columbia, Alberta, Quebec, and Nova Scotia and affiliations to six major Canadian universities. Its research is aimed at preventing arthritis, facilitating early diagnosis, finding new and better treatments and improving quality of life for Canadians, of all ages, living with arthritis.
Arthritis Society Canada
arthritis.ca
Arthritis Society Canada is Canada’s national health charity fighting the fire of arthritis with research, advocacy, innovation, information and support.
Canadian Arthritis Patient Alliance
arthritispatient.ca
The Canadian Arthritis Patient Alliance (CAPA) is a grass-root, patient-driven, independent, national advocacy organization with members across Canada and supporters both Canadian and International.
Canadian Spondyloarthritis Association
sparthritis.ca
The Canadian Spondyloarthritis Association supports people living with spondyloarthritis, including ankylosing spondylitis, psoriatic arthritis, enteropathic arthritis, juvenile idiopathic arthritis, and associated spondyloarthritis diseases.
Cassie + Friends Society for Children with Juvenile Arthritis and Other Rheumatic Diseases
cassieandfriends.ca
Cassie + Friends is the only charity in Canada dedicated 100% to the pediatric rheumatic disease community. Rooted in their four pillars, they champion research, education, connection and support for pediatric rheumatic diseases. Working with patients, caregivers, health care professionals, researchers, and other friends, they provide life-changing support, education, community and research to help affected children and families.
Scleroderma Canada
scleroderma.ca
Scleroderma Canada is the national advocate for those affected by this rare and difficult disease. Established in 1999, it works collaboratively with regional and international organizations to bring health care research, education and clinical care together to ensure those affected by scleroderma have access to the latest advances in care.
Sjögren’s Society of Canada
sjogrenscanada.org
Founded in 2006, the Sjögren’s Society of Canada’s mission is to provide support and encouragement to all who have Sjögren’s Syndrome, and to provide information and education to patients, the public and the medical community as to the symptoms, condition and research findings on Sjögren’s
International
The Arthritis Foundation
arthritis.org
The Arthritis Foundation creates a powerful network of support through shared experiences, empowering information and meaningful connections. The website offers good information on most types of arthritis, as well as an excellent section on exercise and arthritis and a wide-ranging drug guide.
ASIF - Axial Spondyloarthitis International Federation
asif.info
ASIF is an international membership organisation representing patient associations around the globe specialising in the support of patients with Axial Spondyloarthritis (axSpA). ASIF’s mission is to advocate globally to improves the lives of people affected by axial spondyloarthritis and related conditions.
The Global Rheumatoid Arthritis (RA) Network
globalranetwork.org
Founded in 2016 by RA patient organizations and leaders from 18 countries, the Global RA Network was formed to build international relationships and identify and work on common goals and initiatives to improve the lives of people living with RA around the world. Arthritis Consumer Experts serves as the Network’s secretariat.
International Foundation for AiArthritis
aiarthritis.org
The International Foundation for AiArthritis are leaders in advancing education, advocacy, and research for those impacted by autoimmune and autoinflammatory arthritis diseases through peer-led guidance, collaboration, and resources that are driven by patient-identified issues and patient-infused solutions.
Osteoarthritis (OA) Action Alliance
oaaction.unc.edu
The Osteoarthritis (OA) Action Alliance is a national coalition of concerned organizations mobilized by the Arthritis Foundation and the Centers for Disease Control and Prevention (CDC). It is committed to elevate OA as a national health priority and promoting effective policy solutions that aim to address the individual and national toll of OA.
Research
Bone and Joint Canada
boneandjointcanada.com
Bone and Joint Canada is a knowledge translation network of people who have an interest in the management of conditions affecting bones and joints. It has undertaken projects across the country to implement best practices across Canada in Hip & Knee Replacement, Hip Fracture, Low Back Pain, Osteoarthritis and Injury Prevention in Soccer; make resources and tool kits accessible to health care professionals; host conferences to train health care professionals; support planning and training for research; and pursue new initiatives in bone and joint care and injury prevention.
CATCH (Canadian Early Arthritis Cohort)
earlyarthritis.ca
The Canadian Early Arthritis Cohort study (CATCH for short) is a Canadian multicentre research study that aims to improve the quality of care for people with early inflammatory arthritis. CATCH is the only Canadian-wide early arthritis cohort study that is following people with new onset inflammatory or rheumatoid arthritis over time to examine the course of their disease and their response to the treatments provided by their healthcare team
Canadian Institutes of Health Research (CIHR) Institute of Musculoskeletal Health and Arthritis
cihr-irsc.gc.ca/e/13217.html
The CIHR Institute of Musculoskeletal Health and Arthritis (CIHR-IMHA) is the hub for strategic initiatives in musculoskeletal (MSK), skin and oral health research in Canada. IMHA is mandated to provide research leadership related to: active living, mobility and the wide range of conditions related to bones, joints, muscles, connective tissue, skin as well as the mouth, teeth and craniofacial region.
Canadian Rheumatology Association (CRA)
rheum.ca
The Canadian Rheumatology Association represents Canadian rheumatologists and promotes their pursuit of excellence in arthritis and rheumatic disease care, education and research through leadership, education and communication.
Cochrane Musculoskeletal (CM)
cochranemsk.org
Cochrane Musculoskeletal is made up of health care professionals, researchers and consumer representatives that belong to Cochrane, an international, non-profit organization that aims to help people make well-informed decisions about health care by preparing, maintaining and promoting reviews on the effects of health care treatments.
Knowledge Translation Canada
ktcanada.org
Knowledge Translation (KT) Canada is a network of Canadian experts in knowledge translation joining forces to tackle the greatest challenge in health care today: the fact that although there is a great deal of health research being conducted, there is a gap in applying the results at the patient’s bedside and in every day health decisions. Its goal is to improve how research results are communicated, develop a consensus on KT terminology and methods of measuring success, evaluate various KT approaches, and to find ways to ensure that KT efforts have a lasting impact across the continuum of care by engaging health professionals, community members and various health decision-making groups.
International
American College of Rheumatology (ACR)
rheumatology.org
Founded by 1934, the American College of Rheumatology (ACR) is a not-for-profit, professional association committed to advancing the specialty of rheumatology. Headquartered in Atlanta, GA, this medical society serves nearly 8,500 physicians, health professionals, and scientists worldwide who work in the medical subspecialty of rheumatology. The ACR supports its members by providing meaningful education, research, advocacy, and practice support.
The European Alliance of Associations for Rheumatology (EULAR)
eular.org
The European Alliance of Associations for Rheumatology, EULAR, is the organisation which represents the people with arthritis/rheumatism, health professionals in rheumatology (HPR) and scientific societies of rheumatology of all the European nations.
Regulatory
CADTH – The Canadian Agency for Drugs and Technologies in Health
cadth.ca
CADTH is an independent, not-for-profit organization responsible for providing health care decision-makers with objective evidence to help make informed decisions about the optimal use of health technologies, including: drugs, diagnostic tests, medical, dental, and surgical devices and procedures. In addition to evidence, it also provides advice, recommendations, and tools.
Health Canada
canada.ca/en/health-canada.html
Health Canada is responsible for helping Canadians maintain and improve their health. It ensures that high-quality health services are accessible and works to reduce health risks.
Institut national d’excellence en santé (INESSS)
inesss.qc.ca
The Institut national d’excellence en santé et en services sociaux (INESSS) was created on January 19, 2011, succeeding the Conseil du médicament and the Agence d’évaluation des technologies et des modes d’intervention en santé (AETMIS). INESSS’s mission is to promote clinical excellence and the efficient use of resources in the health and social services sector.
Public Health Agency of Canada
phac-aspc.gc.ca
The Public Health Agency of Canada empowers Canadians to improve their health. In partnership with others, its activities focus on preventing disease and injuries, responding to public health threats, promoting good physical and mental health, and providing information to support informed decision making.
Guidelines for links
In accordance with our Guiding Principles, the links provided on this Resources page are limited to sites that Arthritis Consumer Experts (ACE) has reviewed, with input from our scientific advisors. Links to external websites do not imply endorsement or guarantee of the function, accuracy or currency of the websites and the information contained within them.
Inclusion/ Removal Policy
Websites included in the Resources page are reviewed on a regular basis. ACE considers the following criteria when evaluating websites but may include websites that do not meet all the criteria if they are considered useful to arthritis patients.
Inclusion Criteria
Join our email list
Get the latest arthritis news and updates from ACE directly to your inbox.
Sign up here.
Learn more about arthritis and managing disease with these patient organizations, research, and regulatory resources, recommended by our community.
Arthritis Organizations:
Canada
Arthritis Broadcast Network
arthritisbroadcastnetwork.org
Led by Arthritis Consumer Experts, the Arthritis Broadcast Network (ABN) is a multi-media platform for the arthritis community to share news, information and stories about living well with arthritis. A proven, effective, popular source of arthritis patient information and education, ABN has the most videos and views on a Canadian YouTube arthritis channel.
Arthritis Research Canada serves in an advisory capacity for the scientific content of the ABN.
Arthritis Health Professions Association
ahpa.ca
The Arthritis Health Professions Association (AHPA) provides an excellent forum for health professionals working in the field of arthritis to learn, share knowledge, collaborate, and network.
Arthritis Research Canada
arthritisresearch.ca
Arthritis Research Canada is the largest clinical arthritis research centre in North America, with centres in British Columbia, Alberta, Quebec, and Nova Scotia and affiliations to six major Canadian universities. Its research is aimed at preventing arthritis, facilitating early diagnosis, finding new and better treatments and improving quality of life for Canadians, of all ages, living with arthritis.
Arthritis Society Canada
arthritis.ca
Arthritis Society Canada is Canada’s national health charity fighting the fire of arthritis with research, advocacy, innovation, information and support.
Canadian Arthritis Patient Alliance
arthritispatient.ca
The Canadian Arthritis Patient Alliance (CAPA) is a grass-root, patient-driven, independent, national advocacy organization with members across Canada and supporters both Canadian and International.
Canadian Spondyloarthritis Association
sparthritis.ca
The Canadian Spondyloarthritis Association supports people living with spondyloarthritis, including ankylosing spondylitis, psoriatic arthritis, enteropathic arthritis, juvenile idiopathic arthritis, and associated spondyloarthritis diseases.
Cassie + Friends Society for Children with Juvenile Arthritis and Other Rheumatic Diseases
cassieandfriends.ca
Cassie + Friends is the only charity in Canada dedicated 100% to the pediatric rheumatic disease community. Rooted in their four pillars, they champion research, education, connection and support for pediatric rheumatic diseases. Working with patients, caregivers, health care professionals, researchers, and other friends, they provide life-changing support, education, community and research to help affected children and families.
Scleroderma Canada
scleroderma.ca
Scleroderma Canada is the national advocate for those affected by this rare and difficult disease. Established in 1999, it works collaboratively with regional and international organizations to bring health care research, education and clinical care together to ensure those affected by scleroderma have access to the latest advances in care.
Sjögren’s Society of Canada
sjogrenscanada.org
Founded in 2006, the Sjögren’s Society of Canada’s mission is to provide support and encouragement to all who have Sjögren’s Syndrome, and to provide information and education to patients, the public and the medical community as to the symptoms, condition and research findings on Sjögren’s
International
The Arthritis Foundation
arthritis.org
The Arthritis Foundation creates a powerful network of support through shared experiences, empowering information and meaningful connections. The website offers good information on most types of arthritis, as well as an excellent section on exercise and arthritis and a wide-ranging drug guide.
ASIF - Axial Spondyloarthitis International Federation
asif.info
ASIF is an international membership organisation representing patient associations around the globe specialising in the support of patients with Axial Spondyloarthritis (axSpA). ASIF’s mission is to advocate globally to improves the lives of people affected by axial spondyloarthritis and related conditions.
The Global Rheumatoid Arthritis (RA) Network
globalranetwork.org
Founded in 2016 by RA patient organizations and leaders from 18 countries, the Global RA Network was formed to build international relationships and identify and work on common goals and initiatives to improve the lives of people living with RA around the world. Arthritis Consumer Experts serves as the Network’s secretariat.
International Foundation for AiArthritis
aiarthritis.org
The International Foundation for AiArthritis are leaders in advancing education, advocacy, and research for those impacted by autoimmune and autoinflammatory arthritis diseases through peer-led guidance, collaboration, and resources that are driven by patient-identified issues and patient-infused solutions.
Osteoarthritis (OA) Action Alliance
oaaction.unc.edu
The Osteoarthritis (OA) Action Alliance is a national coalition of concerned organizations mobilized by the Arthritis Foundation and the Centers for Disease Control and Prevention (CDC). It is committed to elevate OA as a national health priority and promoting effective policy solutions that aim to address the individual and national toll of OA.
Research
Bone and Joint Canada
boneandjointcanada.com
Bone and Joint Canada is a knowledge translation network of people who have an interest in the management of conditions affecting bones and joints. It has undertaken projects across the country to implement best practices across Canada in Hip & Knee Replacement, Hip Fracture, Low Back Pain, Osteoarthritis and Injury Prevention in Soccer; make resources and tool kits accessible to health care professionals; host conferences to train health care professionals; support planning and training for research; and pursue new initiatives in bone and joint care and injury prevention.
CATCH (Canadian Early Arthritis Cohort)
earlyarthritis.ca
The Canadian Early Arthritis Cohort study (CATCH for short) is a Canadian multicentre research study that aims to improve the quality of care for people with early inflammatory arthritis. CATCH is the only Canadian-wide early arthritis cohort study that is following people with new onset inflammatory or rheumatoid arthritis over time to examine the course of their disease and their response to the treatments provided by their healthcare team
Canadian Institutes of Health Research (CIHR) Institute of Musculoskeletal Health and Arthritis
cihr-irsc.gc.ca/e/13217.html
The CIHR Institute of Musculoskeletal Health and Arthritis (CIHR-IMHA) is the hub for strategic initiatives in musculoskeletal (MSK), skin and oral health research in Canada. IMHA is mandated to provide research leadership related to: active living, mobility and the wide range of conditions related to bones, joints, muscles, connective tissue, skin as well as the mouth, teeth and craniofacial region.
Canadian Rheumatology Association (CRA)
rheum.ca
The Canadian Rheumatology Association represents Canadian rheumatologists and promotes their pursuit of excellence in arthritis and rheumatic disease care, education and research through leadership, education and communication.
Cochrane Musculoskeletal (CM)
cochranemsk.org
Cochrane Musculoskeletal is made up of health care professionals, researchers and consumer representatives that belong to Cochrane, an international, non-profit organization that aims to help people make well-informed decisions about health care by preparing, maintaining and promoting reviews on the effects of health care treatments.
Knowledge Translation Canada
ktcanada.org
Knowledge Translation (KT) Canada is a network of Canadian experts in knowledge translation joining forces to tackle the greatest challenge in health care today: the fact that although there is a great deal of health research being conducted, there is a gap in applying the results at the patient’s bedside and in every day health decisions. Its goal is to improve how research results are communicated, develop a consensus on KT terminology and methods of measuring success, evaluate various KT approaches, and to find ways to ensure that KT efforts have a lasting impact across the continuum of care by engaging health professionals, community members and various health decision-making groups.
International
American College of Rheumatology (ACR)
rheumatology.org
Founded by 1934, the American College of Rheumatology (ACR) is a not-for-profit, professional association committed to advancing the specialty of rheumatology. Headquartered in Atlanta, GA, this medical society serves nearly 8,500 physicians, health professionals, and scientists worldwide who work in the medical subspecialty of rheumatology. The ACR supports its members by providing meaningful education, research, advocacy, and practice support.
The European Alliance of Associations for Rheumatology (EULAR)
eular.org
The European Alliance of Associations for Rheumatology, EULAR, is the organisation which represents the people with arthritis/rheumatism, health professionals in rheumatology (HPR) and scientific societies of rheumatology of all the European nations.
Regulatory
CADTH – The Canadian Agency for Drugs and Technologies in Health
cadth.ca
CADTH is an independent, not-for-profit organization responsible for providing health care decision-makers with objective evidence to help make informed decisions about the optimal use of health technologies, including: drugs, diagnostic tests, medical, dental, and surgical devices and procedures. In addition to evidence, it also provides advice, recommendations, and tools.
Health Canada
canada.ca/en/health-canada.html
Health Canada is responsible for helping Canadians maintain and improve their health. It ensures that high-quality health services are accessible and works to reduce health risks.
Institut national d’excellence en santé (INESSS)
inesss.qc.ca
The Institut national d’excellence en santé et en services sociaux (INESSS) was created on January 19, 2011, succeeding the Conseil du médicament and the Agence d’évaluation des technologies et des modes d’intervention en santé (AETMIS). INESSS’s mission is to promote clinical excellence and the efficient use of resources in the health and social services sector.
Public Health Agency of Canada
phac-aspc.gc.ca
The Public Health Agency of Canada empowers Canadians to improve their health. In partnership with others, its activities focus on preventing disease and injuries, responding to public health threats, promoting good physical and mental health, and providing information to support informed decision making.
Guidelines for links
In accordance with our Guiding Principles, the links provided on this Resources page are limited to sites that Arthritis Consumer Experts (ACE) has reviewed, with input from our scientific advisors. Links to external websites do not imply endorsement or guarantee of the function, accuracy or currency of the websites and the information contained within them.
Inclusion/ Removal Policy
Websites included in the Resources page are reviewed on a regular basis. ACE considers the following criteria when evaluating websites but may include websites that do not meet all the criteria if they are considered useful to arthritis patients.
Inclusion Criteria
- provides information that is relevant to arthritis patients
- provides accurate and reliable information
- clearly identifies the sources of information on its site
- identifies its mandate, scope, and objectives
- identifies its sources of funding and sponsorship
- exists primarily for informational or educational purposes and not to promote a product or service
- identifies the author or responsible organization and provides information about their credentials
- provides a way to contact the author, organization, or webmaster
- provides information that is reasonably current and is reviewed and updated regularly
- is well organized and easy to use
- provides unique information that is not easily found elsewhere
- is out of date and is no longer maintained
- contains numerous defunct links
- is found to contain inaccurate or misleading information
- is replaced by another site that provides superior coverage on the same topic
Join our email list
Get the latest arthritis news and updates from ACE directly to your inbox.
Sign up here.
Arthritis Consumer Experts
ACE thanks Arthritis Research Canada (ARC) for its scientific review of ACE and JointHealth™ information and education programs.