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JointHealth™ express   November 8, 2010


Invitation to participate in a research study about the impact of arthritis on fathers

What is the purpose of the study?
The aim is to better understand how inflammatory types of arthritis affect the ability of fathers to fulfill activities related to nurturing and caring for their children. This information will be used to improve arthritis care in the future.

Who can participate?
You are eligible to participate in the study if:
  • You have an inflammatory type of arthritis, like rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis, lupus, or juvenile idiopathic arthritis; and,
  • You are a father with at least one child (under 21 years) at home. You still qualify if you co-parent and your children live with you part-time.
Participants may live anywhere in Canada.

Who is doing the research?
The research team is led by Dr. Catherine Backman, an associate professor in occupational therapy at the University of British Columbia (UBC) and researcher at the Arthritis Research Centre of Canada. Three UBC students are assisting with the project: Alana Longson, Leah DeBlock, and Thao Dao.

What will study participants do?
You are asked to fill out a survey that will take 40 to 80 minutes to complete. The survey may be done online (at a secure site with password protection) or on a paper copy mailed to you with a stamped and addressed return envelope. The survey asks about arthritis symptoms, health status, parenting, and family life.

Some participants who live in the Metro Vancouver area are also invited to participate in an interview, conducted by the student research assistants, to further explore their experiences of parenting as someone living with arthritis. Interviews will last 40 to 80 minutes.

If you are interested, you may choose to do a survey, an interview, or both.

To participate or to get more information, contact:
Alana Longson, research assistant
alongson@arthritisresearch.ca tel. 604-871-4564

Catherine Backman, principal investigator
catherine.backman@ubc.ca tel. 604-822-7409

The research team also welcomes inquiries from fathers with arthritis who would like to serve as consumer collaborators, advising the research team on the project.

Arthritis Consumer Experts
www.jointhealth.org