Links
The internet can be a powerful and empowering research and communication tool for the person with arthritis. JointHealth™ provides links to sites found useful in arthritis education, self-management and advocacy.
While the internet is a useful place to find research-based arthritis information, it is important to note that many sites on the World Wide Web have not been updated in months, or even years. Many contain information largely driven by product advertising and might be biased towards providing material to convince a web site visitor to buy scientifically unproven products.
Before browsing through a web site, go to the "about us" section to learn who owns or operates the site, how it is funded, and whether it is governed by a set of "guiding principles".
Sites that carry the HONcode certification are considered to be the most useful and reliable online medical and health information sources available. The HONcode program is administrated by the Health On the Net Foundation (HON). The HON is a non-profit, non-governmental organization, accredited to the Economic and Social Council of the United Nations. JointHealth™ subscribes to the HONcode principles.
In accordance with our Guiding Principles, the links provided below are limited to sites which we have had the opportunity to review and consider. Links from ACE operated web sites to those not managed by ACE do not imply endorsement or credibility of the service, information or product offered through the linked sites.
If you would like us to consider adding your site to our list of links, please contact us - info@jointhealth.ca
Arthritis Organization Websites:
Canada
Arthritis Research Centre of Canada
www.arthritisresearch.ca
The Arthritis Research Centre of Canada (ARC) is a Vancouver based research centre that conducts consumer-driven clinical research and trials related to arthritis diagnosis, prognosis, prevention, care outcomes and quality of life issues. It has a strong multi-disciplinary research team of outstanding medical doctors and research scientists, that collaborate with medical professionals around the world.
The BC Lupus Society
www.bclupus.org
The BC Lupus Society's mission is to provide education and support to people affected by lupus; to create awareness of lupus; and to support advances in lupus treatment and research.
Best Medicines Coalition
www.bestmedicines.ca
This grassroots group of consumer and advocate organizations focuses on reform of Canada's drug review process to ensure access to best evidence-based medicines and to advocate for the implementation of an effective surveillance system to monitor the safety of drugs once they have been approved and are in the market.
Better Pharmacare Coalition
www.betterpharmacare.com
The Better PharmaCare Coalition represents health organizations, patient advocacy groups and consumers who believe patient access to medications deserves protection.
Canadian Arthritis Patient Alliance
www.arthritis.ca/capa
The Canadian Arthritis Patient Alliance (CAPA) is a voluntary organization with a mission to unite Canadians with arthritis and assist them in becoming more effective advocates. With a course charted by people with arthritis, and the assistance of others interested in arthritis advocacy, it is making a difference in the lives of people with arthritis.
Canadian Institutes of Health Research (CIHR)
Institute of Musculoskeletal Health and Arthritis
www.cihr-irsc.gc.ca/e/13217.html
CIHR supports research to enhance active living, mobility and movement, and dental health, addressing causes, prevention, screening, diagnosis, treatment, support systems, and palliation for conditions related to bones, joints, muscles, connective tissue, skin and teeth.
Canadian Rheumatology Association (CRA)
www.rheum.ca
The Canadian Rheumatology Association represents Canadian rheumatologists and promotes their pursuit of excellence in arthritis care and research in Canada through leadership, education and communication. Click here to get a list of rheumatologists in your province or to find a particular individual. The rheumatologists in the CRA work together to develop a unified voice in the treatment of arthritis and access to care issues. The results of discussions and their recommendations are published in documents found on this site.
Canadian Rheumatology Research Consortium
www.rheumtrials.ca
This organization of Canadian rheumatologists is taking a leadership role in coordinating rheumatology clinical trials across the country. Plans are underway for a Web-enabled national clinical trials patient registry. The intent is to provide an opportunity for rheumatology trialists, basic researchers, and sponsors to collaborate in arthritis research and better meet the needs of Canadians living with arthritis.
Canadian Spondylitis Association
www.spondylitis.ca
The Canadian Spondylitis Association's mission is to be the leader in Canada providing support, education and advocacy for the spondyloarthritis patient community.
The UBC Division of Rheumatology
www.ubcrheumatology.com
United States
American College of Rheumatology (ACR)
www.rheumatology.org
The American College of Rheumatology is a "organization of and for physicians, health professionals, and scientists that advances rheumatology through programs of education, research, advocacy and practice support that foster excellence in the care of people with arthritis and rheumatic and musculoskeletal diseases". This site offers a "patients and public" section that includes topics such as: education, advocacy, locating a rheumatologist and information on medications.
Alliance for Lupus Research
www.lupusresearch.org
The Alliance for Lupus Research (ALR) is a national health organization whose mission is to find treatments for the prevention and cure of systemic lupus erythematosus (SLE, or lupus) through the funding of a national research program.
The Arthritis Foundation
www.arthritis.org
This comprehensive website offers good information on most types of arthritis, as well as an excellent section on exercise and arthritis and a wide-ranging drug guide. The site also has a message board area where you can communicate with other people with arthritis.
National Institute of Arthritis and Musculoskeletal and Skin Diseases National Institutes of Health (United States)
www.niams.nih.gov
This organization leads the U.S. effort on research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, training of basic and clinical scientists to carry out this research and dissemination of information on research progress to improve public health.
Australia
Arthritis Victoria
www.arthritisvic.org.au
This organization works to reduce the occurrence and impact of arthritis for those living across Victoria. The website provides information on the types of arthritis and how to manage one's arthritis as well as a list of services they provide to arthritis consumers.
Australian Rheumatology Association (ARA)
www.rheumatology.org.au
This website provides information on the ARA, as well as resources for rheumatologists and other health care professionals. It also has a "community information" page that has patient specific information about managing arthritis such as how to find a rheumatologist in Australia and material on treatments.
New Zealand
Arthritis New Zealand
www.arthritis.org.nz
This non-profit organization supports people living with arthritis through the provision of education and support services as well as through the funding of research. The site has information on the types of arthritis, treatments used to manage arthritis, resource listings, and relevant links, including those for national and international disease specific websites.
United Kingdom
Arthritis Research Campaign
www.arc.org.uk
Online Research Resources:
National Library of Medicine (NLM)
www.nlm.nih.gov
The NLM is the world's largest medical library providing resources and research on biomedicine and healthcare. This site contains a section that is exclusively for the public that covers a wide range of health issues. The site is also accessible in Spanish.
Public Library of Science (PLOS)
www.plos.org
This non-profit organization provides free online access to scientific and medical research articles. The site is easy to use and covers a big range of work.
PubMed
www.ncbi.nlm.nih.gov/pubmed
PubMed is a service of the National Library of Science. On this site, there is free access to MEDLINE, which is a database of bibliographic information (not full articles) from health and science related journal. The site contains a series of tutorials for new users.
Cochrane Musculoskeletal Group (International)
www.cochranemsk.org
This specialized group of health care professionals, researchers and consumer representatives belong to the Cochrane Collaboration, an international organization that aims to help people make well-informed decisions about health care by preparing, maintaining and promoting reviews of the effects of health care treatments. An excellent source for the latest research information.
The internet can be a powerful and empowering research and communication tool for the person with arthritis. JointHealth™ provides links to sites found useful in arthritis education, self-management and advocacy.
While the internet is a useful place to find research-based arthritis information, it is important to note that many sites on the World Wide Web have not been updated in months, or even years. Many contain information largely driven by product advertising and might be biased towards providing material to convince a web site visitor to buy scientifically unproven products.
Before browsing through a web site, go to the "about us" section to learn who owns or operates the site, how it is funded, and whether it is governed by a set of "guiding principles".
Sites that carry the HONcode certification are considered to be the most useful and reliable online medical and health information sources available. The HONcode program is administrated by the Health On the Net Foundation (HON). The HON is a non-profit, non-governmental organization, accredited to the Economic and Social Council of the United Nations. JointHealth™ subscribes to the HONcode principles.
In accordance with our Guiding Principles, the links provided below are limited to sites which we have had the opportunity to review and consider. Links from ACE operated web sites to those not managed by ACE do not imply endorsement or credibility of the service, information or product offered through the linked sites.
If you would like us to consider adding your site to our list of links, please contact us - info@jointhealth.ca
Arthritis Organization Websites:
Canada
Arthritis Research Centre of Canada
www.arthritisresearch.ca
The Arthritis Research Centre of Canada (ARC) is a Vancouver based research centre that conducts consumer-driven clinical research and trials related to arthritis diagnosis, prognosis, prevention, care outcomes and quality of life issues. It has a strong multi-disciplinary research team of outstanding medical doctors and research scientists, that collaborate with medical professionals around the world.
The BC Lupus Society
www.bclupus.org
The BC Lupus Society's mission is to provide education and support to people affected by lupus; to create awareness of lupus; and to support advances in lupus treatment and research.
Best Medicines Coalition
www.bestmedicines.ca
This grassroots group of consumer and advocate organizations focuses on reform of Canada's drug review process to ensure access to best evidence-based medicines and to advocate for the implementation of an effective surveillance system to monitor the safety of drugs once they have been approved and are in the market.
Better Pharmacare Coalition
www.betterpharmacare.com
The Better PharmaCare Coalition represents health organizations, patient advocacy groups and consumers who believe patient access to medications deserves protection.
Canadian Arthritis Patient Alliance
www.arthritis.ca/capa
The Canadian Arthritis Patient Alliance (CAPA) is a voluntary organization with a mission to unite Canadians with arthritis and assist them in becoming more effective advocates. With a course charted by people with arthritis, and the assistance of others interested in arthritis advocacy, it is making a difference in the lives of people with arthritis.
Canadian Institutes of Health Research (CIHR)
Institute of Musculoskeletal Health and Arthritis
www.cihr-irsc.gc.ca/e/13217.html
CIHR supports research to enhance active living, mobility and movement, and dental health, addressing causes, prevention, screening, diagnosis, treatment, support systems, and palliation for conditions related to bones, joints, muscles, connective tissue, skin and teeth.
Canadian Rheumatology Association (CRA)
www.rheum.ca
The Canadian Rheumatology Association represents Canadian rheumatologists and promotes their pursuit of excellence in arthritis care and research in Canada through leadership, education and communication. Click here to get a list of rheumatologists in your province or to find a particular individual. The rheumatologists in the CRA work together to develop a unified voice in the treatment of arthritis and access to care issues. The results of discussions and their recommendations are published in documents found on this site.
Canadian Rheumatology Research Consortium
www.rheumtrials.ca
This organization of Canadian rheumatologists is taking a leadership role in coordinating rheumatology clinical trials across the country. Plans are underway for a Web-enabled national clinical trials patient registry. The intent is to provide an opportunity for rheumatology trialists, basic researchers, and sponsors to collaborate in arthritis research and better meet the needs of Canadians living with arthritis.
Canadian Spondylitis Association
www.spondylitis.ca
The Canadian Spondylitis Association's mission is to be the leader in Canada providing support, education and advocacy for the spondyloarthritis patient community.
The UBC Division of Rheumatology
www.ubcrheumatology.com
United States
American College of Rheumatology (ACR)
www.rheumatology.org
The American College of Rheumatology is a "organization of and for physicians, health professionals, and scientists that advances rheumatology through programs of education, research, advocacy and practice support that foster excellence in the care of people with arthritis and rheumatic and musculoskeletal diseases". This site offers a "patients and public" section that includes topics such as: education, advocacy, locating a rheumatologist and information on medications.
Alliance for Lupus Research
www.lupusresearch.org
The Alliance for Lupus Research (ALR) is a national health organization whose mission is to find treatments for the prevention and cure of systemic lupus erythematosus (SLE, or lupus) through the funding of a national research program.
The Arthritis Foundation
www.arthritis.org
This comprehensive website offers good information on most types of arthritis, as well as an excellent section on exercise and arthritis and a wide-ranging drug guide. The site also has a message board area where you can communicate with other people with arthritis.
National Institute of Arthritis and Musculoskeletal and Skin Diseases National Institutes of Health (United States)
www.niams.nih.gov
This organization leads the U.S. effort on research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, training of basic and clinical scientists to carry out this research and dissemination of information on research progress to improve public health.
Australia
Arthritis Victoria
www.arthritisvic.org.au
This organization works to reduce the occurrence and impact of arthritis for those living across Victoria. The website provides information on the types of arthritis and how to manage one's arthritis as well as a list of services they provide to arthritis consumers.
Australian Rheumatology Association (ARA)
www.rheumatology.org.au
This website provides information on the ARA, as well as resources for rheumatologists and other health care professionals. It also has a "community information" page that has patient specific information about managing arthritis such as how to find a rheumatologist in Australia and material on treatments.
New Zealand
Arthritis New Zealand
www.arthritis.org.nz
This non-profit organization supports people living with arthritis through the provision of education and support services as well as through the funding of research. The site has information on the types of arthritis, treatments used to manage arthritis, resource listings, and relevant links, including those for national and international disease specific websites.
United Kingdom
Arthritis Research Campaign
www.arc.org.uk
Online Research Resources:
National Library of Medicine (NLM)
www.nlm.nih.gov
The NLM is the world's largest medical library providing resources and research on biomedicine and healthcare. This site contains a section that is exclusively for the public that covers a wide range of health issues. The site is also accessible in Spanish.
Public Library of Science (PLOS)
www.plos.org
This non-profit organization provides free online access to scientific and medical research articles. The site is easy to use and covers a big range of work.
PubMed
www.ncbi.nlm.nih.gov/pubmed
PubMed is a service of the National Library of Science. On this site, there is free access to MEDLINE, which is a database of bibliographic information (not full articles) from health and science related journal. The site contains a series of tutorials for new users.
Cochrane Musculoskeletal Group (International)
www.cochranemsk.org
This specialized group of health care professionals, researchers and consumer representatives belong to the Cochrane Collaboration, an international organization that aims to help people make well-informed decisions about health care by preparing, maintaining and promoting reviews of the effects of health care treatments. An excellent source for the latest research information.
Arthritis Consumer Experts
ACE thanks the Arthritis Research Centre of Canada (ARC) for its scientific review of JointHealth™
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